Shalini Kedia

Shalini founded the Fragile X society of India in 2003 with a goal to provide support to families affected with Fragile X Syndrome. She saw that the families affected are growing in number a lot faster than the awareness on the condition and took up awareness as the next goal. The organization has supported around 4000 families affected by the condition. Shalini is the co-author of the guidelines for Fragile X issued by the IAP. She is a TedX speaker and has spoken at various conferences on the subject.